by Dr. Elizabeth Dowsett and Jane Colby
People with ME are not just ‘normally’ ill (to use a contradictory phrase!). They do not just have sore throats and swollen glands, but may feel – and be – more ill than they have ever felt in their lives.
Without personal experience, this is difficult to imagine, so ‘outsiders’, whether doctors, teachers, or family, often do not realise the seriousness of what they are dealing with. More and more studies show physical damage.
http://www.investinme.org/Article-035%20Betty%20Dowsett.htm