LIVING WITH ME » What is ME?

Chronic Fatigue Syndrome: 10 Things People Misunderstand About This Fatigue

admin — Thu, 11 Nov 2010 17:00:16 +0000

I think we can all agree that Chronic Fatigue Syndrome is a stupid name for an incapacitating illness. I think we can also agree that it is exceedingly misleading to the casual observer.

Here are ten things that are often misunderstood about the “fatigue” of Chronic Fatigue Syndrome.

http://www.empowher.com/chronic-fatigue-syndrome/content/chronic-fatigue-syndrome-10-things-people-misunderstand-about-fatig

The administrators of the ‘Living With ME’ website do not advocate the use of any particular type of medication, treatment or healthcare! YOU should ALWAYS seek advice from a DOCTOR / GP / CONSULTANT before undertaking or ceasing any treatment!

Biochemical and vascular aspects of pediatric chronic fatigue syndrome

admin — Tue, 07 Sep 2010 17:00:41 +0000

http://www.meresearch.org.uk/research/projects/children.html

Study shows ME/CFS ‘virus link’ found in children

admin — Tue, 07 Sep 2010 17:00:27 +0000

A study on children has found further evidence that ME, or Chronic Fatigue Syndrome, could be caused by a virus.

Scientists at the University of Dundee study found abnormalities in the white blood cells of children with ME/CFS, suggesting they had been fighting off infection.

ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome (CFS), causes debilitating tiredness.

About 150,000 people in the UK have ME/CFS, 15,000 of whom are children.

The condition is characterised by physical and mental exhaustion following normal activities. Symptoms can include muscle pain, sore throat, tender lymph nodes, multi-joint pain and headaches.

http://www.bbc.co.uk

Chronic Fatigue Syndrome: Treatments Studied

admin — Tue, 20 Jul 2010 17:00:48 +0000

Scientists in Norway studied 828 patients with chronic fatigue syndrome to see which treatments helped and which ones didn’t.

Rest and pacing helped these patients the most. Shielding ran a close third.

Pacing involves deliberately doling out the small energy supply, mindful that each expenditure causes the small reservoir to dwindle. The goal is to accomplish necessities of the day without collapse and ending up in deficit.

http://www.empowher.com

XMRV non-publication controversy breaks in the British press

admin — Sat, 10 Jul 2010 17:00:18 +0000

From The Independent, 9 July 2010 (Story by science editor Steve Connor)

Study that ‘solves’ chronic fatigue syndrome blocked

A study that supports the controversial link between chronic fatigue syndrome and a new type of virus has been blocked from being published in a leading scientific journal even though it had been accepted for publication by its editors.

http://www.meassociation.org.uk

MERESEARCHUK – Breakthrough magazine

admin — Fri, 30 Apr 2010 17:00:51 +0000

ME Research UK publishes its own magazine Breakthrough approximately twice a year, featuring updates on projects funded by the charity, recent research from around the world, information about Friends’ fundraising activities, and other articles on ME/CFS issues.

http://www.meresearch.org.uk

MERESEARCHUK – Research papers

admin — Wed, 28 Apr 2010 17:00:13 +0000

These are research papers published to date from projects funded by ME Research UK.

http://www.meresearch.org.uk

MERESEARCHUK – Research database

admin — Thu, 22 Apr 2010 17:00:29 +0000

This database consists of the summary data (including abstracts) of over 3,000 research publications on ME and CFS, extracted from MEDLINE and the Journal of Chronic Fatigue Syndrome.

http://www.meresearch.org.uk

Kay Gilderdale: what is ME?

admin — Fri, 29 Jan 2010 17:00:17 +0000

Also known as Chronic Fatigue Syndrome (CFS), it affects around 250,000 people in the UK.Women are more likely than men to develop ME but the illness has long baffled the medical profession as there is no diagnostic test and no “cure”, aside from rest.

http://www.telegraph.co.uk

Researchers find virus in blood cells of CFS patients

admin — Sat, 10 Oct 2009 17:00:20 +0000

Researchers at the Whittemore Peterson Institute in Reno, USA have identified genetic material (DNA) from a mouse virus – murine leukaemia virus-related virus (XMRV) – in 68 out of 101 CFS patients (67%) compared to 8 out of 218 (3.7%) of healthy people.

Further blood tests showed that more than 95% of CFS patients have antibodies to XMRV, indicating they had been infected with the virus, which may then have lain dormant in their DNA.

http://www.afme.org.uk/news.asp?newsid=649