LIVING WITH ME

A woman who suffers from Chronic Fatigue Syndrome is starting up a support group for local sufferers. Sarah Mann, who recently moved to the area from Newark in Nottinghamshire, has suffered from chronic fatigue syndrome (CFS) also know as myalgic encephalopathy (ME) for two years.

http://www.meassociation.org.uk

People with ME/CFS living in the Ashford area of Kent who would like to get together for a chat about common concerns – perhaps with a view to forming a local support group – are invited to contact Leonie Watt at  lnwatt@hotmail.co.uk

lnwatt@hotmail.co.uk

People with ME/CFS living in the Ashford area of Kent who would like to get together for a chat about common concerns – perhaps with a view to forming a local support group – are invited to contact Leonie Watt at  lnwatt@hotmail.co.uk  This e-mail address is being protected from spambots. You need JavaScript enabled to view it  The idea at the moment is to see whether it might be worth setting up regular meetings, on a monthly or bi-monthly basis.

Action for M.E., the country’s leading M.E. charity, has been awarded funding to set up a new online centre for Scots with M.E.

The award has been granted from the Self Management Fund for Scotland which is run by the Long Term Conditions Alliance Scotland (LTCAS) and funded by the Scottish Government.

http://www.afme.org.uk

Edwina Hart, Minister for Health and Social Services in Wales, has set up a “Task and Finish Group” to work on a new framework for NHS services for people with ME/CFS in Wales – to be run on NICE Guideline principles. Wales is notoriously short of effective specialist services for people with ME/CFS.

http://www.meassociation.org.uk/content/view/1047/161/

Contact details for another dozen local support groups – all either formed or notified to us in the past couple of months or so – are now included on this website. To find them, please click on the ‘Find a local support group’ button on the homepage.

By county, the new groups are:

ESSEX

MenU, a young people’s group in Chelmsford

KENT

East Kent ME

LANCASHIRE

Bispham ME Support, Blackpool

LINCOLNSHIRE

Sutton-on-Sea ME Support Group

MERSEYSIDE

South Sefton ME Support Group (Bootle, near Liverpool)

NOTTINGHAMSHIRE

Positive Support Group for ME/CFS

SOMERSET

Bath Area ME Support

Frome area ME/CFS Support Group

SUFFOLK

Mid-Suffolk Support Group for Parents of Children with ME

SUSSEX

Easbourne ME and FM Self-Help Group

YORKSHIRE

Hope for ME, a Christian-based group which welcomes all-comers and will this year celebrate its 10th anniversary.

http://www.meassociation.org.uk/content/view/889/70/

Latest contact details for the national inpatient service for people with ME/CFS at the Essex Neurosciences Unit at the Queen’s Hospital, Romford, Essex, are now available on this website. The entry also contains contact details for their outpatient and rehabilitation services. Please click on the ‘Quick Link’ button entitled ‘NHS specialist services in England’.

http://www.meassociation.org.uk/content/view/885/70/

A new support group for parents of children with ME has been set up in mid-Suffolk.

Founder chairman Liz Tilbrook, who has cared for her own daughter for several years, would like to hear from parents interested in joining.

http://www.meassociation.org.uk/content/view/746/70/

The ME/CFS service for children and adolescents at Lister Hospital, Stevenage, has been reinstated.

http://www.meassociation.org.uk/content/view/745/70/