LIVING WITH ME » ME Organisations & Charities

What’s Behind Noise Sensitivity in Fibromyalgia & Chronic Fatigue Syndrome?

admin — Sat, 29 Jan 2011 10:00:43 +0000

More and more, noise sensitivity is being recognized as part of fibromyalgia and chronic fatigue syndrome. It’s a very real problem for many of us — in a recent poll here, it was one of the top sensitivities people listed.

Noise sensitivity can cause problems at work and in social situations, or just about any time we’re in public. It might be the volume level alone, it might be a repetitive sound, or it might be a multitude of sounds — no matter the source, it can cause anxiety, panic, and even widespread pain as the receptors in our brains become overwhelmed.

http://chronicfatigue.about.com/b/2011/01/08/noise-sensitivity-fibromyalgia-chronic-fatigue-syndrome.htm

The administrators of the ‘Living With ME’ website do not advocate the use of any particular type of medication, treatment or healthcare! YOU should ALWAYS seek advice from a DOCTOR / GP / CONSULTANT before undertaking or ceasing any treatment!

Big Lottery Fund boost for Sheffield projects

admin — Mon, 08 Nov 2010 17:00:45 +0000

Two projects in Sheffield have won lottery grants totalling £250,000.

The Emmaus project, which helps homeless people, is to get £120,000 while Sheffield ME Group’s information support service gets £136,000.

The money for both projects has come from the Big Lottery Fund (BIG) as part of its Reaching Communities programme.

Helen Fox, project administrator for Emmaus Sheffield, said: “The BIG grant is absolutely crucial in these difficult financial times.”

http://www.bbc.co.uk/news/uk-england-south-yorkshire-11299537

A Place for ME

admin — Mon, 05 Jan 2009 09:00:44 +0000

“A Place for ME” is a registered charity (no 1120028) that aims to provide adapted housing and ME-trained carers to people with ME. We want to provide people with options, a solution in a crisis, and security for the future. We will improve the quality of life for people with ME, when, at the moment, problems with inappropriate housing and care cause suffering.

http://www.aplaceforme.info/

NHS specialist services in England

admin — Mon, 15 Sep 2008 19:21:30 +0000

There is a growing number of specialist NHS services in England for people with ME/CFS. We hope to be publishing information shortly about similar services in Scotland and Wales.

http://www.meassociation.org.uk/content/view/316/70/

The ME/CFS Society of NSW Inc.

admin — Sun, 14 Sep 2008 09:53:00 +0000

The ME/CFS Society of NSW Inc. is a Registered Charity that aims to provide information and support to all who are affected by Myalgic Encephalomyelitis (“ME”) also called Chronic Fatigue Syndrome (“CFS”) and any related illnesses, to promote accurate awareness of ME/CFS within medical and scientific communities and the wider public, and to support research into the treatment of ME/CFS.

http://www.me-cfs.org.au/

Norges ME-forening

admin — Sun, 14 Sep 2008 09:52:44 +0000

http://www.me-forening.no/

Fatigatio eV

admin — Sun, 14 Sep 2008 09:52:19 +0000

http://www.fatigatio.de/

CFS Research Foundation

admin — Sat, 13 Sep 2008 17:25:06 +0000

The aims of the CFS Research Foundation are three-fold; first, to gain a workable understanding of how the disease is caused (pathogenesis), and second, with that knowledge, to develop useful treatments which will lead to a cure in most cases. And thirdly, to develop a diagnostic test for the disease which is simple enough to be used widely and specific only to Chronic Fatigue Syndrome (CFS).

http://www.cfsrf.com/goals.html

ME/CFS Foreningen – Danish ME/CFS Association

admin — Sat, 13 Sep 2008 17:24:32 +0000

http://www.me-cfs.dk/

L’ASSOCIATION FRANÇAISE DU SYNDROME DE FATIGUE CHRONIQUE ET DE FIBROMYALGIE

admin — Sat, 13 Sep 2008 17:24:00 +0000

http://asso.nordnet.fr/cfs-spid/