LIVING WITH ME

Playing music uses a tremendous amount of your brain.  It’s no wonder that brain fog from fibromyalgia and chronic fatigue syndrome can impair our ability to play.

http://chronicfatigue.about.com

Freezing in the morning, sweating in the afternoon — the current temperature change is playing havoc with my temperature sensitivity, which is a common symptom of fibromyalgia and chronic fatigue syndrome.

http://chronicfatigue.about.com

B.C. doctors are failing to comply with a requirement to report all cases of Lyme disease to public health authorities and are confused about diagnosing it, according to a report published in the current B.C. Medical Journal.

Humans can get Lyme disease if they are bitten by an infected tick. The blacklegged, sesame-seed-sized tick is found throughout southern B.C.

Two weeks of early treatment with antibiotics is essential to prevent potentially serious long-term disabilities such as arthritis, persistent pain, fatigue, neurological symptoms or even death.

http://www.vancouversun.com

ROCKVILLE, Md., May 9, 2011 /PRNewswire-USNewswire/ — The following is being released by MMG:

Arthur began experiencing nagging, unexplained pain when he was just 6 years old. Although he had been very active as a child, the constant pain that plagued him began to slow him down. After three years of visits to various doctors and a battery of tests, Arthur was finally diagnosed with fibromyalgia. Arthur’s mother had been recently diagnosed with fibromyalgia, leading the family physician to make the connection that Arthur had it as well.

Arthur’s diagnosis took so long because fibromyalgia is most commonly diagnosed in adults. However, fibromyalgia can develop in children and adolescents as well. Because many people are unaware that fibromyalgia can begin at a young age, teens, like Arthur, often go undiagnosed or untreated for this chronic pain condition. Misdiagnosis is common in children and adolescents because fibromyalgia can be confused with growing pains or chronic fatigue syndrome.

http://www.prnewswire.com/

Long-lasting, debilitating pain can result from everyday tasks or health conditions — and sometimes for no apparent reason. A specialist suggests chronic-pain help and how to manage pain’s fellow passenger, depression…

http://news.peacefmonline.com/

Kelley Mooneyham spends 90 percent of her life in her king-size bed.

At night, she sleeps on the side closer to the door. During the day, she lies on the opposite side, next to a large window that allows the afternoon sun to hit her face

http://www.rgj.com

(Ivanhoe Newswire) — Chronic fatigue syndrome (CFS) is characterized by unexplained and debilitating tiredness and is associated with headaches, disrupted sleep, muscle pain and difficulty in concentrating. New research shows that ethnicity, depression, lack of exercise or social support, and social difficulties are major risk factors for CFS.

http://www.redorbit.com

I know from bitter experience that ME, or chronic fatigue syndrome (CFS), is a difficult subject.

I did a TV programme to try to get to the bottom of it, and to find out what caused it. I couldn’t, and that upset a lot of people.

The situation is still the same – we don’t know what causes it, but we do know that it can be a debilitating condition.

http://www.mirror.co.uk/

The internet is a treasure trove for people living with a chronic illness. I have Chronic Fatigue Syndrome, and the internet has nourished me in ways I couldn’t have imagined.

http://www.empowher.com

As scientists race to find a biological cause for chronic fatigue syndrome, long considered by many doctors to exist in patients’ heads, the National Institutes of Health could shed new light on the debate at a major scientific workshop on the disorder.

http://online.wsj.com/

In early April, the National Institutes of Health yheld a scientific workshop on the still-mysterious chronic fatigue syndrome, attempting to suss out the potential biological causes of the disease.

As the WSJ’s Amy Dockser Marcus reports, researchers have been working to decipher CFS, also known as myalgic encephalomyelitis. Among the avenues they’re exploring: developing diagnostic tests based on proteins or other biological markers, studying other infectious diseases that seem to prompt CFS in certain patients and sussing out if the virus XMRV plays a role in the disease  — a controversial issue, as we’ve reported.

http://blogs.wsj.com

By now, many of you have heard news reports about the PACE study out of the U.K., suggesting that cognitive behavioral therapy and exercise are helpful for chronic fatigue syndrome, and misguided media reports suggesting that this shows that the illness is all in people’s minds.

Two other studies came out recently as well, which add perspective.

http://www.huffingtonpost.com

Patients Medical, a leading integrative medical center in New York City, is helping chronic fatigue sufferers to find low-cost, all-natural alternatives to pharmaceuticals. These alternatives have been shown to decrease fatigue symptoms and increase energy levels safely and effectively.

http://www.thestreet.com/

A new study shores up support for the theory of central sensitization in chronic fatigue syndrome (ME/CFS). It also connects specific types of migraines with sets of ME/CFS symptoms.

http://chronicfatigue.about.com

Globally recognized Stanford virologist Dr. Jose G Montoya* explains how we know ME/CFS is a REAL disease. He describes patient case examples, then cutting edge research by his team and other researchers that daily increases clues to the cause of ME/CFS and hope for its cure.

http://www.prohealth.com/

Despite previous evidence that both cognitive behavioral therapy (CBT) and graded exercise therapy (GET) can be effective treatments for chronic fatigue syndrome (CFS), some patients’ organizations have reported that these treatments can be harmful and instead prefer pacing and specialist medical care (SMC). The PACE trial, published Online First and in an upcoming Lancet, shows that while CBT and GET have positive effects on CFS when combined with SMC as compared to SMC alone, adaptive pacing therapy (APT) with SMC is no more effective than SMC alone.

http://www.sleepreviewmag.com

Scientists studying diseases should be motivated by patients, but not led by them.

In the furious debate over whether chronic fatigue syndrome is linked to a mysterious retrovirus called XMRV, scientists can at least agree on one thing: the whole thing is a mess.

http://www.nature.com