In order to leave a serious impact of the disease by its name, on Thursday, a federal advisory committee reached on a unanimous decision to alter the name of chronic fatigue syndrome (CFS) to CFS-ME.
The legitimacy of the changed name was not suspected by even one member of the Chronic Fatigue Syndrome Advisory Committee that is an advisory agency to the Department of Health and Human Services (HHS). As per the panel, ME could either depict myalgic encephalomyelitis or myalgic encephalopathy.
Chronic Fatigue Syndrome and homeschooling. There’s a combination that’s only for the stout of heart. Or perhaps for those with a masochistic streak.
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Homeschooling isn’t for everyone. That’s especially true for the CFS community who must avoid stressors and stimulation wherever possible.
The aim of this study was to investigate the possibility that a decreased mitochondrial ATP synthesis causes muscular and mental fatigue and plays a role in the pathophysiology of the chronic fatigue syndrome (CFS/ME).
Methods: Female patients (n=15) and controls (n=15) performed a cardiopulmonary exercise test (CPET) by cycling at a continuously increased work rate till maximal exertion. The CPET was repeated 24 h later.
A possible life changing illness, Fergus Bescoby examines the ramifications
Myalgic encephalomyelitis or chronic fatigue syndrome, also known as ME, CFS or post-viral fatigue syndrome (PVFS), is a condition that causes extreme physical and mental tiredness that seriously interferes with a person’s daily life.
http://www.ifaonline.co.uk
Is the pain we feel with fibromyalgia and chronic fatigue syndrome a type of neuropathy? It’s an idea that’s been around for several years but is garnering wider support as researchers find more evidence.
http://chronicfatigue.about.com
BY LINDLEY ESTES
In 2007, April Thompson was running a marathon when exhaustion caught up with her.
From that point on, the 37-year-old Washington resident said she was perpetually tired, plagued by headaches and chronic pain.
When she was still miserable on vacation in North Carolina months later, Thompson visited a doctor and received a diagnosis that put all of her symptoms into perspective: chronic fatigue syndrome.
A study just published in the European Journal of Applied Physiology shows measurable abnormalities of blood-pressure control in adolescent chronic fatigue syndrome.
Researchers monitored heart rate and blood pressure in kids 12-18 who had chronic fatigue syndrome and in healthy controls, both while they were laying down still and also while they were in conditions simulating mild orthostatic stress (low blood pressure upon standing which causes dizziness.)
http://chronicfatigue.about.com
The sedentary life-style caused by extreme fatigue is a significant risk factor for heart disease, which is a leading cause of death in Chronic Fatigue Syndrome (CFS) patients.
Asking patients with chronic pain to complete a symptom diary may amplify their perceptions of pain and ultimately do more harm than good, a study in healthy volunteers has suggested. Canadian researchers recruited 35 female university students who were free of any acute or chronic medical problems.
http://www.rheumatologyupdate.com.au
Flu clinics are popping up all over, and once again those of us with fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) are faced with the decision: to vaccinate or not to vaccinate.
http://chronicfatigue.about.com
FELICITY Amazon is locked in a bureaucratic battle to get a public house that suits her disability needs, and claims the Department of Housing is not willing to help.
Suffering severe chronic fatigue syndrome and a side complication known as multiple chemical sensitivity, Ms Amazon’s situation is desperate.
Despite her doctor officially recognising her as disabled and writing to the Department of Housing, she has been forced to live beyond her means, renting a house in Mundaring for $300 a week on a disability pension.
http://www.inmycommunity.com.au
Our panel of experts answers your questions on everything from living with M E to sluggish circulation and abdominal pain.
For years, celiac disease (CD) has been under diagnosed or misdiagnosed because its symptoms are so similar to those of other diseases. CD has been confused with irritable bowel disease, inflammatory bowel disease, diverticulitis, chronic fatigue syndrome, iron-deficiency anemia, and more. However, as healthcare providers and patients become more aware of the symptoms, diagnosis rates are increasing. According to the Celiac Sprue Association, there are three steps that should be taken to confirm a diagnosis of CD: 1) a physical exam, including blood tests; 2) a biopsy of the small intestine; and 3) implementation of a gluten-free diet.
http://www.idahostatejournal.com/
Have you ever gotten a gift that you couldn’t use because of your fibromyalgia or chronic fatigue syndrome? I get these all the time — mostly body washes that give me a rash or have headache-inducing fragrances. I’ve also had event tickets go to waste because of a flare, or gotten foods that I can’t eat because of my gluten sensitivity. Some gifts might even be offensive, if, for example, someone who hounds you to “exercise more” gives you a Pilates DVD.
http://chronicfatigue.about.com
A morning shower — it helps you start the day invigorated and refreshed, right? Um, no, not so much for many of us. A shower seems like a basic, simple thing, but it can pose major problems for someone with fibromyalgia or chronic fatigue syndrome.
I’ve seen a lot of comments here about how exhausting a shower can be. Why would a shower make us tired, sometimes even wiping us out for the rest of the day?
http://chronicfatigue.about.com
Fibromyalgia (FMS) is often considered an “old woman’s” illness, even though the average age of diagnosis is now in the mid-30s. Some doctors refuse to diagnose chronic fatigue syndrome (ME/CFS) in young people because they’re clinging to the long-outdated notion of “yuppy flu” and burnout.
http://chronicfatigue.about.com/b/2010/09/17/age-onset-of-fibromyalgiachronic-fatigue-syndrome.htm
In 2006, sequences described as xenotropic murine leukemia virus-related virus (XMRV) were discovered in prostate cancer patients.
In October 2009, we published the first direct isolation of infectious XMRV from humans and the detection of infectious XMRV in patients with chronic fatigue syndrome.
http://www.prohealth.com/library/showarticle.cfm?libid=15614
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Pacing is hard for anyone with chronic fatigue syndrome (ME/CFS), and a new study shows that teenagers with the condition really need to learn how to do it.
Researchers looked at two groups of teenagers 6 months after they’d come down with mononucleosis (the “kissing disease,” caused by the Epstein-Barr virus.) The kids with ME/CFS were just as active as those who’d fully recovered, in spite of the severe symptoms and fatigue caused by their activity level.
The makers of the immune-modulating-drug Ampligen, Hemispherx Biopharma Inc., presented new data Sept. 8 at the first International Workshop on XMRV suggesting that the drug works differently in chronic fatigue syndrome patients depending on their XMRV status.
http://chronicfatigue.about.com/b/2010/09/20/ampligen-for-xmrv-positive-chronic-fatigue-syndrome.htm
I think we can all agree that Chronic Fatigue Syndrome is a stupid name for an incapacitating illness. I think we can also agree that it is exceedingly misleading to the casual observer.
Here are ten things that are often misunderstood about the “fatigue” of Chronic Fatigue Syndrome.
For the past few years, researchers have been tantalized by reports linking a new retrovirus to some cases of prostate cancer and, more recently—and more controversially—the mysterious illness chronic fatigue syndrome. With the excitement over discovering a possible new cause for these diseases, however, has come skepticism, as some groups have found scarcely a trace of the novel virus, called XMRV.
http://www.sciencemag.org/cgi/content/short/329/5998/1454
BOSTON — Within a year, the debate over whether a mouse virus causes chronic fatigue syndrome is likely to be settled, a prominent researcher told MedPage Today in an exclusive InFocus video interview here at the Interscience Conference on Antimicrobial Agents and Chemotherapy.
Two teams have now claimed to have isolated sequences from murine leukemia viruses, including XMRV, from most patients with chronic fatigue syndrome, but several other research groups have been unable to confirm the findings.
http://www.medpagetoday.com/MeetingCoverage/ICAAC/22166
Two projects in Sheffield have won lottery grants totalling £250,000.
The Emmaus project, which helps homeless people, is to get £120,000 while Sheffield ME Group’s information support service gets £136,000.
The money for both projects has come from the Big Lottery Fund (BIG) as part of its Reaching Communities programme.
Helen Fox, project administrator for Emmaus Sheffield, said: “The BIG grant is absolutely crucial in these difficult financial times.”
http://www.bbc.co.uk/news/uk-england-south-yorkshire-11299537
(ARA) – If it seems like it’s just harder to roll out of bed every morning when the temperature drops and sunrise comes later, you’re not imagining things – and you’re not alone. Whether they have chronic fatigue, seasonal affective disorder (SAD) or an old-fashioned case of the seasonal blues, many people experience fatigue when seasons change and the weather cools.
http://www.crestonnewsadvertiser.com/articles/ara/2010/09/13/8034710404/index.xml
Prolonged and severe tiredness over months that does not go away with rest is not something to brush off – it could be chronic fatigue syndrome.
WE all know that women have dual roles – in the economic workforce, as well as in the domestic setting.
While this has been a known fact for centuries, it has taken a while for the world to acknowledge and reward women’s contributions on an equal scale with men.
http://thestar.com.my/health/story.asp?file=/2010/9/12/health/6995043&sec=health
A LOT of people with Chronic Fatigue Syndrome struggle to describe their condition or its symptoms. I don’t have that problem.
It’s a relatively simple equation, it just needs a bit of imagination.
Think back to the worst hangover you’ve ever had.
The one when you get home at 4.30am, barely able to stand and then your alarm goes off seemingly before your head even hits the pillow to tell you the hardest working day of your life is about to begin.
How long have you had fibromyalgia and chronic fatigue syndrome? Are you a newbie or a seasoned veteran? Take the poll!
Some of us were sick for a long time before we were diagnosed. What did it take for you to get a diagnosis?
http://chronicfatigue.about.com
Because it is something of a mystery disease that can show itself as a bewildering array of other conditions, you could have Leaky Gut Syndrome and not even realize it.
The reason is that Leaky Gut Syndrome is one of the many concepts in medicine that cuts across the boundary lines of specific diseases.
Teenagers with chronic fatigue syndrome may push themselves too hard, which contributes to ongoing fatigue, claim the authors of a new study.
Adolescents who do not recover from chronic fatigue syndrome (CFS) continue to experience extreme fatigue, to use medical services at a high rate, and to miss school and work; and, those who attempt to keep up with their healthy peers experience greater fatigue and need for sleep, according to two articles published in the September issue of the Archives of Pediatrics & Adolescent Medicine.