LIVING WITH ME

Indicative of a possible viral infection, they are similar to those previously identified in adults with the condition.
Samples taken from youngsters contained higher than normal levels of free radicals, molecules which can damage cells, tissues and organs via a process called oxidative stress. Also, a much greater number of neutrophils, the most common type of white blood cells, were found to be at the end of their life cycle. The high turnover of neutrophils indicates the body’s need to fight infection.

http://www.physorg.com/

Cerus has struggled for years to convince regulators that its technology for ridding the nation’s blood supply of pathogens deserves a chance on the U.S. market. Now the Concord, CA-based biotech company is pinning some renewed hope for its business on a study that says it can wipe out a newly discovered virus that some scientists suspect may the culprit behind the poorly understood disease known as chronic fatigue syndrome.

http://www.xconomy.com/

Brain fog does strange things to those of us with fibromyalgia and chronic fatigue syndrome. While mine has improved significantly, I still struggle with a few aspects of it.

http://chronicfatigue.about.com

As I sit here looking at my baby toe, my thoughts turn to acupuncture and how I love it. It has been a valuable companion on my return journey from Chronic Fatigue Syndrome.

Case in point. I stubbed that toe big-time last Wednesday. It became a purple, glowering blob and I figured I was in for a very bad time.

Fortunately, my next acupuncture visit was the following day. While my naturopath Dr. Kelly Upcott did not jab needles into my ailing toe, she would have if she’d seen it sooner.

http://www.empowher.com

JADED, miserable, aching, terrified — for thousands of sufferers of Chronic Fatigue Syndrome, it seems their bodies have turned savagely on them.

And there is little hope. Some doctors will treat CFS as a cover story for deep depression, or simple malingering.

Now a psychologist has come up with a treatment she says cured her CFS — a combination of nutrition, medical treatment, de-stressing and self-help.

http://www.herald.ie

Do you think fibromyalgia and chronic fatigue syndrome can be cured? Certainly, some people who used to be seriously disabled from them are now living symptom free. Some say they’re cured, while others say they’re in remission.

http://chronicfatigue.about.com/

For those who are seeking an effective CFS aid this scalar energy pendant may be an effective chronic fatigue solution, using an energy pendant without suffering any side effects may just be the answer they are looking for.

http://www.release-news.com/

Unrefreshing sleep is one of the common features of fibromyalgia and chronic fatigue syndrome — no matter how much we sleep, we don’t feel rested.

However, each of us has our own set of sleep problems, and the amount of hours we spend asleep varies greatly. Some of us (me included) are insomniacs and lay awake most of the night, while others can do little besides sleep.

http://chronicfatigue.about.com

A group led by researchers from the US Food and Drug Administration and National Institutes of Health has used nested PCR assays to detect gene sequences from a virus related to murine leukemia virus in patients diagnosed with chronic fatigue syndrome, a disorder that has no known cause or cure, according to a recently published paper.

http://www.genomeweb.com

Do you find yourself dripping with sweat at odd times, for no apparent reason? This is one of those bizarre, confusing symptoms of fibromyalgia and chronic fatigue syndrome that you don’t see on those inadequate little symptoms lists. Doctors and researchers don’t really bother themselves with it because we have so many bigger problems, but when you have to deal with this every day it can have a big impact on your life.

http://chronicfatigue.about.com

Most, if not all, of us with fibromyalgia and chronic fatigue syndrome have to live with symptoms of dysautonomia, which is dysfunction of the autonomic nervous system. I recently took a poll on which dysautonomia symptoms are the most bothersome, and it got an unprecedented response.

http://chronicfatigue.about.com/

New Zealanders with myalgic encephalopathy (ME) — commonly known as chronic fatigue syndrome — are looking at studies in the United States that show a possible link between the illness and a retrovirus.

http://www.voxy.co.nz

Patients with ME will no longer be able to donate blood in the UK under new safety guidelines.

Officials say the ban, starting on 1 November, is designed to protect the health of people with ME – also known as chronic fatigue syndrome.

But the ME Association says the move is motivated by concerns that the illness may be caused by a virus similar to HIV that can be passed on via blood.

http://www.meassociation.org.uk/?p=2308

This MEA summary is intended to be a factual and balanced account of the current situation. It follows the story of retroviral infection (ie XMRV and MLVs) in ME/CFS over the past year and tries to answer all the common questions that are being raised.

The summary is very cautious when it comes to drawing any firm conclusions about the role of retroviral infection in ME/CFS – as either a diagnostic marker, causative agent, or abnormality that requires treatment with antiviral medication.

http://www.meassociation.org.uk/?p=2240

The discovery of a potential retroviral link to ME/CFS, which is estimated to affect some 17 million people worldwide, has certainly caught the world’s attention — no bad thing for an under-researched and often-overlooked illness! The scientific report, entitled “Detection of infectious retrovirus, XMRV, in the blood cells of CFS patients”, appeared online in Science, one of the most prestigious scientific journals in the world, on 8th October 2009 and described the findings of a consortium of researchers from the Whittemore Peterson Institute (WPI, located at the University of Nevada, Reno), the National Cancer Institute (part of the National Institutes of Health) and the Cleveland Clinic, Ohio.

http://www.meresearch.org.uk

We are receiving a growing number of enquiries from people with ME/CFS who are having difficulties when trying to take out a new life insurance policy.

In some cases, the insurance company is no longer willing to cover people with ME/CFS. In other cases, the insurer is only willing to do so if the payments are loaded.

http://www.meassociation.org.uk/?p=2290

ME Research UK publishes its own magazine Breakthrough approximately twice a year, featuring updates on projects funded by the charity, recent research from around the world, information about Friends’ fundraising activities, and other articles on ME/CFS issues.

http://www.meresearch.org.uk/

Work on a study which is exploring the possibility of setting up a UK post-mortem tissue bank for ME/CFS is covered in a short report in this week’s Journal of Clinical Pathology. The ME Association is co-funding the study.

http://www.meassociation.org.uk/?p=2263

Action for M.E. submission to the WCA call for evidence.

On 12 August 2010, Action for M.E. launched a public survey to find out how people with M.E. would like us to respond to two major Government consultations relating to benefits.

http://www.afme.org.uk/news.asp?newsid=931

The board of NHS Highland has agreed to end future support for homeopathic treatment for its patients.

Director of public health Dr Margaret Somerville told the board there was “no evidence” that the remedies work.

Patients presently receiving homeopathic treatment will be allowed to continue in the meantime.

http://www.meassociation.org.uk/?p=2232

Publication of research by Dr Gwen Kennedy and her team at the University of Dundee offers further indications that M.E. has a pathology that now needs some serious resources to be made available for much larger scale research.

The study, published in the journal Archives of Pediatrics & Adolescent Medicine, found abnormalities in the white blood cells of children with M.E., suggesting they had been fighting off infection.

http://www.afme.org.uk/news.asp?newsid=925

From 1 November 2010, people with Myalgic Encephalitis/Chronic Fatigue Syndrome (ME) will be permanently deferred from giving blood in the UK.

http://www.meassociation.org.uk/?p=2330

Letter to the paper from Rebecca Sultana, Nicola K Reiss and Beatrice Gatt (ME Sufferers Malta).

ME patients need government support

Following recent research that links Myalgic Encephalomyelitis (ME) to a retrovirus called XMRV and the indefinite blood ban on people with a history of this chronic neurological disease, ME Sufferers Malta calls on the government to provide appropriate education and training of health care professionals.

http://www.meassociation.org.uk/?p=2179

From The Times of Malta, Comment section, 1 October 2020 (Written by Michael Briguglio, chairman of Malta’s Green Party)

What makes one’s condition a disability? Notwithstanding the natural causes of a disability, one has to look at the social context surrounding such a condition. For example, the public transport system would exclude “disabled” people if the buses were not purposely designed.

http://www.meassociation.org.uk/?p=2143

NHS Scotland has published the Scottish Good Practice Statement on its website, with extensive revisions in the light of patient comment following professional peer review.

http://www.afme.org.uk/news.asp?newsid=918

From BBC News, 1 October 2010

New rules aimed at banning discrimination by employers, covering areas such as age, disability and pay, have come into force.

The Equality Act covers many workplace areas and draws nine separate pieces of legislation into a single Act.

Equalities Minister Theresa May says it will now be easier for firms to comply with anti-discrimination rules.

http://www.meassociation.org.uk/?p=2107

Paul Burstow MP, Minister of State for Care Services Department, has invited Sir Peter Spencer to meet him in October, to discuss the recommendations made in our election manifesto for M.E.

The manifesto, which was produced in consultation with people with M.E., highlighted priorities in health, welfare, research, employment, social care, education and the interests of carers.

http://www.afme.org.uk/news.asp?newsid=911

From Access Legal, the website of Shoosmiths Solicitors, 1 October 2010 (Story by Stephanie Tracey).
Chronic fatigue syndrome – or myalgic encephalomyelitis (ME) – has long been the subject of controversy in the medical world.

Labelled ‘yuppie flu’ in the 1980s, for many years even its very existence was challenged by medical practitioners.

http://www.meassociation.org.uk/?p=2134

I’m recovering from Chronic Fatigue Syndrome, and for me it’s been a naturopathic process all the way. Treatment for the last three and a half years with Dr. Kelly Upcott, ND has been slowly bringing me home.

http://www.empowher.com

Vitamin D is one of the most frequently recommended supplements for people with fibromyalgia and chronic fatigue syndrome, and with good reason. But is your supplement doing enough for you?

http://chronicfatigue.about.com